she's more than the spot on her face

today we had another hemangioma appointment

and as excited as I was to post about her progress

 a part of me was very annoyed. 

 more than I would like to admit people ask about her spot

 how's it doing 

how big is it now 

and so on..... 

while I appreciate the concern

 a part of me wants to yell.... 

"there is more to her than the spot!!" 

we've had a rough week filled with appointments

 that have all turned out fine 

so a part of my reaction could be from high level of anxiety 

based around these appointments with many specialist

 however, 

i said i was going to be honest

 and my honest reaction 

when i sat down and write this post 

was 

anger

 frustration

 and sadness

 my daughter is more than the spot on her face 

she's starting to coo and laugh 

 she's fussy at night 

which as much as I hate these moments 

they are her 

and i love that

 she's getting into a routine

 which I am thankful for

 so today instead if posting specifics about her face

 because frankly i am tired talking about it

 i am simply going to post

 that we are so thankful for everyone's concern

 the hemangioma is still there,

 it's improving, 

and she is as wonderful as ever

one week down.....

here we are at the end of week one

of 

treatment for miss emerson's 

hemangioma.

this is the hemangioma at the beginning of the treatment

honestly 

i was expecting much change

since

she was only on 1/2 strength dosage

but

we did see change!!!

last week's measurements

were

2x2.5cm

and 

.8cm deep

this week 

the hemangioma looks like this

changes we've noticed

1) it looks more defined

2) the scabbing is starting to come off

3)less spidering

and the measurements are...

(drum roll please!)

2x2.2 cm

(shrunk .3 cm)

and

.6 cm deep

(shorter by .2 cm)

YAY!!

now we are on a full dosage of propranolol

and 

will go back to the doctor next week

for

a weight check

and 

more measurements!

she just found out she weighs a whopping 12 lbs.

she's my wide eyed beauty!

hemangioma treatment week one!!

yesterday we started treatment on

miss emmi's hemangioma

treatment for now 

will consist of 

twice a day dose of 

{propranolol}

weekly weight checks 

and 

blood sugar checks

weight checks because

the dosage is based on weight

blood sugar checks

because

 a major side effect is low blood sugar

which is a big no no in an infant

when can we expect to see results???

between 3 weeks

and

14 months

wow 

that's a time frame

already though 

after 3 treatments

we've seen some minor changes

one being the color of the hemangioma

the second 

being less spidering around the hemangioma

so i figure we can track the changes together.

here we are at week one

 

it looks painful

but it isn't

 the medicine made specially for her

 

they say it's cherry flavor!! 

yum! 

and a quick review of the growth of her hemangioma

here she is at one month

 

it's still flat here and we were still under the impression 

it was from the tape used on the ng tube

and here is two months

 

what a change!!!

but that is very characteristic of an hemangioma

they just bloom over night practically

so weekly we will watch it shrink

and notice the changes together

but 

she is NOT in pain

and 

we are very optimistic that it will heal quickly 

and with minimal scarring!

looking forward to next week's pictures

measurements for this week are 2x2.5 cm and 1 cm deep!

any wages on next week's measurements??